People with a rare debilitating disorder from around the world are in Omaha this week at the University of Nebraska Medical Center taking part in the largest study ever done on orthostatic tremor, or OT. Dr. Diego Torres-Russotto is a movement disorder specialist at UNMC and says “OT is a miserable disease”.
Dr. Torres-Russotto the disorder causes people to feel like they are going to fall down but only when they are standing still. He says they can only stand for short periods of time before they have to either sit down or start walking to relieve the symptom. Little is known about this disorder but Dr. Torres-Rossotto says they do know it is more common in females and onset occurs around age 40.
Patients from Spain, England, Canada, and Australia and from all over the U-S are taking part in the week long study that ends Friday. Dr. Torres-Russotto hopes this study will lead to further research and treatment options.