Three-million children nationwide have complex medical conditions and two-thirds rely on Medicaid to pay for that treatment. Wendy Larson is one of dozens of families today and tomorrow in Washington DC for Speak Now for Kids Family Advocacy Day. Larson’s daughter Katelyn received a heart transplant at Children’s Hospital and Medical Center in Omaha and says she is grateful for the Medicaid system.
Larson is joining dozens of parents of child patients to talk to others and members of Congress on the importance of improving health care for the nation’s children with complex medical conditions who are covered by Medicaid.
Larson says, “We are so honored to be here and share our stories with others and people in government who are working to make these changes. We had multiple issues and difficulties with insurance situations and to have that streamlined and not to be in charge of that, not to have that as a huge stress on us trying to coordinate that it will just be a huge relief for us and so many families.”
The ACE Kids Act of 2015 is a bipartisan bill that would organize care for very ill children. It would create a children’s hospital network that is designed regarding the specific need of a child. Families, states and providers would choose whether to join the networks. It would also facilitate care across state Medicaid programs instead of varying state-by-state.